10 important things for Parents if you have a kid born with anomalies.

 

1)As Parents we have the responsbility of raising up the new born, however hard it may sound. To run away from these responsbilities, is a Sin. You may be surrounded with so many thoughts ( most of them negative), to find alternative ways, but the only hope for the new entrant is You and Your Spouse. Never let them down.

 

2) Dont run around seeking opinions from all and Sundry. Sure there are concerned people and they have their views and ideas. But what suits your situation can best be explained  by  your Doctors alone. While it may sound rude to ignore these free ideas, take them and use if it is appropriate.

 

3) Never I repeat never expect Symapthy from others on the situation. It is natural for lots of people to show their concern and be around for some time. But mentally if you push yourself into a corner, expecting everybody to deal with you, with this on their mind is far from reality. Life Moves on and We dont need sympathy on this.

 

4)Dont ever Google/Bing or Search on the net on the subject. With due respect to the literature available in net, your situation is Unique and opinions not related to this only adds to the woes. I have myself found doing this and often ended feeling dejected only to be proven wrong. Get the Best Medical Support possible and leave the rest to them. You will do fine.

 

5)It is often frightening to accept this reality that your life has changed. It is tough to accept this. But once you accept this fact, you would turnaround the situation faster.

 

6) Maintaining a normal life Style may appear little difficult to start with. But please note that life goes and it does not stop because of any of these things. So you need to do what you have been doing all along and continue doing it better. Blaming our selves or our past is of no help and strangely has no connection to the problem in hand.

 

7) If you have siblings for the new born, it is very important to not to neglect them or ignore them during this Process. We have found that the more they are involved, the more affectionate they become with their Siblings. Some times they are the ideal medicine for all those affected kids. They heal it faster.

 

8)Having a Sober life style for some time really helps  especially if your kid would get rid of these anomalies soon . If you  are  a weekend person, who would normally travel/ party / go to malls or would have people to your house, reduce it to a great extent until things get normal. The advantages are that it helps the recurperating kid to avoid catching any infections and this also helps to build a great bond within your family. I have learnt more about my family in the last 6 months than in the last 6 years of time, and  I believe it is wonderful.

 

9)The parents need to have a very honest frank chat on the Situation in hand and clear everything which may disturb them. The responsbility of Father and Mother is very important to deal this and it is better if they are clear in terms of what they have to do and what to expect.

 

10) Never lose your Cheer. This is our life and we can make it better for ourselves. The recuperating kid is happy to See the surroundings happy, Since he has no idea of what he is going through ( which is the best part). A cheerful Disposition and a Positive mindset heals the Kids faster. Be happy that God has chosen you to deal with this and we are Still lucky that we can handle this.  

 

Note from Author. I had my Second Son ISHAN born of September 3rd 2010, who had multiple problems on his birth. He was Operated for Tracheoesophageal fistula on the 2nd day of his birth and Since he had an Imperforate Anus he was Operated for the same and has a Transverse Colostomy. Last month on 4th he was operated for the Imperforate Anus and the Dilation process is on. After two months, based on evalutation, his colostomy would be closed. Enclosed a 6 Month Old Ishan ;-)

 

If you have any of your kids affected on any of the above, and have any qns Which I could answer,Please shoot it to prakash2007@gmail.com. Also please note nothing of the above is Suggestive of any of your own unique conditions. Please use discretion in terms of tackling the way which best suits you.